daydreambeliever Posted September 16, 2008 Share Posted September 16, 2008 Heeey...you probably don't remember me from the Mikagasmic thread (I hardly go there anymore!)...but I remember you! You always put up some really nice pics. And seemed to be a very sweet, nice person. It's nice to have you back! Link to comment Share on other sites More sharing options...
A. Clay Posted September 16, 2008 Share Posted September 16, 2008 TAKE REST WHEN YOU NEED IT Link to comment Share on other sites More sharing options...
Nielo Posted September 16, 2008 Share Posted September 16, 2008 That's great news! I hope the shortness of breath will go away. I missed you! Link to comment Share on other sites More sharing options...
Wendi Posted September 17, 2008 Share Posted September 17, 2008 I am back! Thank you all so much for your reactions here, it makes me feel so welcome, even with my boring stories. I had two though weeks in which I've been thinking and worrying a lot. I just couldn't come online, was too busy with everything that happened. About the Pulmonary Hypertension; finally some good news; I don't have it. The immunologist was quite sure about it, but the lungphysician did some examinations (also that heartcatheterisation, which was quite scary) and made the conclusion that the pressure in my lungs is too high, but it's not PH. They don't have to do something about it because the medications that they use for it are very difficult and heavy and I use a lot of medicins already. Yesterday I had to do an effort-examination (don't know the right word, you have to cycle for 6 minutes and in those minutes they make it heavier every minute. It shows how your lungs deal with it) which was very heavy. I didn't want to give up but the results showed that it wa a bit too much. The level of oxygen dropped very quick so I am curious what they are going to do with that..... Because of this test I feel quite horrible today. Am in a lot of pain and very short of breath. Hope and think tomorrow will be better. For the first time in years my immunoglobulines are on a good level. I take them three times a week now in a double dose, but it seems to work:thumb_yello: I have to say I missed you all, even if it was my own choice to stay offline. I needed some time to make up my mind. Now I am more relaxt so here I am again:mf_rosetinted: So glad to see you back here - and with no PH!! Hope they can help with the shortness of breath though!! Welcome back Link to comment Share on other sites More sharing options...
mari62 Posted September 18, 2008 Share Posted September 18, 2008 Hi Anouk!! welcome back!!!! happy you got some good news! wish with all my heart the docs will find a way to make you feel better! Much love! Link to comment Share on other sites More sharing options...
A. Clay Posted September 18, 2008 Share Posted September 18, 2008 Link to comment Share on other sites More sharing options...
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